Updates

Quick PM update follow-up… Los is being transferred to new facility as of 5pm today. 🙌🙏 Just an FYI to those that have been visiting Los at Mission Hospital — that he will no longer be there. More info on the new LTACH location to follow shortly once the family gets the lay of the land and confirms the visiting hours and protocols there. The Bentley family continues to be blown away and so encouraged by all of the prayers and support flowing in from you all. Thank you so much! 🙏 Let’s go, Los! 💪 BIG UPDATES! Day [...]

Day 38 update Los had a great rest of the day yesterday and he is off to an amazing start today! Yesterday had some more purposeful movement with his left hand and arm while Sylvia and Emily (sisters) were in there “bugging” him (as sisters tend to do on occasion 😜). Brooke was with Los as well, and with the help of Brooke’s favorite nurse giving Los some rather loud marching orders, Los responded by opening his eyes for a few moments yesterday evening before he dozed back off. 🙌🙏 Los has a bit of thick mucus he’s coughed [...]

Day 37 update Los had a challenging Sunday morning and early afternoon. He ‘stormed’ a lot and the meds seemed to have little, if any effect on him. Once he was laid flat, his storming subsided and he began to rest. Once resting , the nurses gave him additional meds which kept him asleep for several hours. Once he awoke, Los became active and deliberately tried repeatedly to remove his ‘belly band’ wrap, grab ice packs and sheets. Later in the evening, Los repeated the same activities. He would go, rest and try again as we spoke to him. [...]

AM update from the Bentley family: Most of yesterday was very hard for Charles with Neuro storming and high temperatures. That came down later in the afternoon after a lot of hard work by the staff using different methods and medications. Late afternoon and through the night was relatively calm apart from one episode of spiking fever. This morning his temperature is normal, and he is calm. Doctors have ordered lab work on a few areas to see what the high fevers might be indicating. We should get that back later today. Charlos is still not awake, but his [...]

The morning update from Charles: Los had a stormy night (neuro-storming) with a considerably high fever, but as of this morning he’s been resting well for the past three hours and his temp is getting back to near normal. Los’ nurse today is very good and engaging; when she asked me what I thought the best plan for today would be; I told her, “ Not much, just to wake him up & get him out of bed” She liked that🤠 She did say she will try to work/move his legs and arms, maybe try the pedal machine later [...]