Updates

2hrs on CPAP yesterday. Doctors are hoping to see that turn around today and start going back the other direction with longer progressions in the days ahead. They will try CPAP and the ergo-bike again this morning and see how Los does. Doctor outlined and reminded us that this is a long process of healing, as they work with Los hour by hour, day by day. Dex (sedation med) is still off. Some occasional posturing / flexion off and on. But overall Los looks comfortable, and his blood pressure and heart rate are back closer to normal. 🙏 Los [...]

Los did 4 hrs on CPAP yesterday… Less time than the days prior, but nurses believe he was tired from the few long prior days on CPAP and wanted to focus on and prioritize rest. Prayers needed for Los’ strength to push through and get back into a CPAP rhythm there. The goal is for longer durations each day. A decent night for Los on the ventilator last night. One neuro-storming incident, which he was able to recover from and settle back down for the remainder of the night. Los’ eyes still opening halfway (dazed state) for a few [...]

June 10th - Morning update A good nights rest on ventilator CPAP all day again yesterday! And the nurse even started a bit of PT with legs on a small ergo-bike machine. 💪 And yesterday evening, as Los was surrounded by family and his siblings, he started to open his eyes off and on…. Halfway open and in a daze for a few moments, before dozing back off for a good nights sleep. Los was also squeezing family members’ hands, rubbing his fingers together, and doing a bit of swallowing on his own. His eyes opened halfway for a [...]

June 9th - Morning update CPAP all day yesterday! They let Los rest on the ventilator overnight. (Nurse equated yesterday’s CPAP performance to Los running a marathon, and that it was good he got some rest overnight to get ready for today’s next CPAP marathon). 💪 Doctor confirmed lungs are still clear, white blood cell counts are good. Fent is off this morning, and they hope it will remain off, which is great! 👍 Dex chugging along at 0.2, which is remaining on for the time being to make sure Los stays comfortable and not agitated by the trach [...]

Los had a restful night on the ventilator (taking a break from CPAP to recharge and rest up after his big 8hr “lung workout” yesterday). CPAP went back on around 7:30am this morning and still going strong there. Still in coma, but sedation meds (Dex at 0.2 and Fent level are slightly lower than yesterday) and doctors will continue to focus on unassisted breathing today. Los and the nurses are working through spurts of trach coughing and discomfort (nurses explain its normal reaction to the trach but will require constant monitoring). Once trach and his mouth are suctioned of [...]